www.myelin.org -- An organization founded by the Odones family, known for developing "Lorenzo's Oil". This project is dedicated to ending human suffering from demyelinating diseases. As a member of the board of directors, Diane Suchomel is helping to accelerate research on myelin repair.
www.fightald.org -- An exceptional foundation that aims to take away the mystery of ALD and replace it with knowledge and understanding of this devastating disease that is affecting our families.
www.specialfamilies.com -- A resource for families with children suffering from debilitating diseases. Find coping strategies and more to help surmount the challenges you and your family may face.