Theodore & Terry Wiener There's a lot that lives in my head. The questions. The fear. The thoughts that feel too strange or too dark to say out loud. If you're a parent or a patient living with a rare disease, I suspect you know exactly what I mean. I also have experience, the kind you only get by living through this, that might help someone else. And I've come to believe a lot of us are carrying the same unspoken thoughts, quietly, alone. So I thought: What if there was one